Rare Disease Display Competition at 2019 State Leadership Conference

In collaboration with the Coordination of Rare Diseases at Sanford, or CoRDS, South Dakota HOSA will be offering a partner event involving interviews and research regarding a rare disease.The actual competition will take place in February during the Great PlainsRare Disease Summit (Saturday, May 11, 2019) at Sanford Research. The event will only be able to take 10 teams. First come, first serve.The competition is similar to the health career display event HOSA offers.

Teams of two will develop a visual display describing specific rare disease as well as a proposed cure/treatment or way to improve a quality of life issue related to the rare disease. The display allows the students to express ideas through an artistic medium to highlight what they have learned about a particular rare disease through research, interactions with a researcher, clinician and/or other healthcare professional. As part of a shadowing experience, teams will spend a minimum of 4 hours with a researcher at Sanford Research.

If you have further questions please contact Tamara Ledeboer at Sanford Research Education at 605.312.6590.

The link for that experience is found here: Sanford Promise Research Shadow Program

Here is the PDF for the event logisitics: Rare Disease Display Event Rules and Guidelines

When filling out the application, please put your HOSA Chapter Name behind the applicant's name so they may be able to identify you for this event!!

Logitics Timeline:

  • September- Event is introduced to the local advisors
  • November- Deadline for teams to register with Sanford Research(10 team max)
  • December- Deadline to select a rare disease
  • March- Deadline for shadow and interview with your researcher
  • May- Competition and Open Forum/Awards

Students who compete in this event will still be able to participate in two other events at the SD HOSA State Leadership Conference in April. The display is similar to the Health Career Display event many HOSA students already take part in.

"I see this as a win-win. HOSA students have an opportunity to come alongside someone with a rare disease to learn more about it and HOSA helps shed some light on some of these diseases that very few people know about." Brock Rops, HOSA State Advisor said.